Thank you next step for this opportunity. To speak on how isolating it can be with someone with a chronic illness especially since I haven’t met anyone with Prune Belly syndrome. https://twitter.com/nextstepfund/status/1639261570415878145
Sharing his experiences and working on Come and Walk a Mile was very important for Ethan, a Next Step participant. He wants to speak up for those living with a #raredisease, give them a voice, show them that they are not alone and they are part of a wider community. Find out why!