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#RAREis Workshop

December 10, 2020 @ 4:30 pm - 6:30 pm


Storytelling in Rare Disease – Horizon’s #RAREis Community raises awareness of rare diseases by sharing stories, accomplishments, hopes, fears, and dreams. Through this virtual workshop, we’ll be discussing the power of sharing stories in rare disease through social media and other avenues.

You have a story that’s just your own. Maybe you want to share it online. Maybe you want to share it with your best friend. Maybe you just want to be able to write it down for yourself.

Join Next Step and #RAREis community to learn how and when to share your story about your #RAREis

Join Next Step and learn about #RareIs
  • #RAREis

    On December 10th, 2020 4:30-6:30 pm we're hosting a workshop (virtually) about #RAREis.

Reach out to Quita if you have questions!


December 10, 2020
4:30 pm - 6:30 pm
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