Thank you next step for this opportunity. To speak on how isolating it can be with someone with a chronic illness especially since I haven’t met anyone with Prune Belly syndrome. https://twitter.com/nextstepfund/status/1639261570415878145
Sharing his experiences and working on Come and Walk a Mile was very important for Ethan, a Next Step participant. He wants to speak up for those living with a #raredisease, give them a voice, show them that they are not alone and they are part of a wider community. Find out why!
Do you know a high school student with sickle cell disease looking for a community? At Next Step’s STRIVE program, we’ve created just that. In this after school program, students will meet peers who face the same challenges caused by the disease. They`ll play games, take part in group projects, like writing a comic book, but most importantly, they’ll do it together.
STRIVE offers programs in Boston, New York City, and Washington D.C. visit the link in our bio to learn more about this amazing program for high school students with sickle cell disease. Enrollment is ongoing through April.