Have you been following Next Step on Instagram? If so, you know that on Tuesdays...read more
Thank you next step for this opportunity. To speak on how isolating it can be with someone with a chronic illness especially since I haven’t met anyone with Prune Belly syndrome. https://twitter.com/nextstepfund/status/1639261570415878145
Sharing his experiences and working on Come and Walk a Mile was very important for Ethan, a Next Step participant. He wants to speak up for those living with a #raredisease, give them a voice, show them that they are not alone and they are part of a wider community. Find out why!