rare genetic conditions
Join our 2022 Summer Campference for young people living with rare genetic disorders
We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...
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Next Step
Next Step Summer Campferences are coming soon!
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#SickleCellAwarenessMonth D27
I still hear the word sickler and it needs to stop
I don’t care if you’ve always used it or if you don’t mean it in a bad way.
It’s a slur, it’s dehumanizing and patients hate it. I hate it.
Don’t use it and correct those that do
We`re just 4 days away from the 2023 Tackle Sickle Cell Casino Night!
We don`t know about you, but we`re looking forward to a great night out! Gambling (with "funny" money), raffle items, and @mccourtytwins it`s going to be amazing!
Proceeds from the evening benefit Next Step and @bostonmedicalcenter and the programs that sickle cell patients rely on.
Tickets and sponsorship opportunities available at the link in our bio!
#IBelieveInMe #TackleSC #Teens #YoungAdults #SickleCellDisease #SickleCell
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As Childhood Cancer Awareness month comes to a close, we want to share with you some great organizations that are doing really important work to help this population.
@elephantsandteamagazine with a mission "To build community and support for the AYA cancer community through wellness, storytelling, education, and research"
@connectingchampions which gives "kids & young adults the agency to explore professions, envision life beyond cancer, and reclaim their identity"
@lucys_love_bus with the mission to "deliver joy, comfort, and quality of life to children with cancer and their families through free integrative therapies and holistic support"
It`s so important that this population has support systems like these as they grow up.
#IBelieveInMe #ChildhoodCancerAwarenessMonth #ChildhoodCancer
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