Rare Genetic Disorders


Meet our 2022 Boston Marathon team!

Meet Sean Brown and Hannah Crowley, our 2022 Boston Marathon team! Sean is new to Team Next Step from...

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Thank you for supporting Next Step.

As a parent of one of Next Step’s youth, I have seen firsthand the impact of this work. Over...

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Next Step is grateful for you. Watch Nicole explain why.

2020 was a year like no other for young people living with a serious illness. The issues playing out...

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#RAREis Workshop

Storytelling in Rare Disease – Horizon’s #RAREis Community raises awareness of rare diseases by sharing stories, accomplishments, hopes, fears,...

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Summer Campference Kick Off

We’re just two weeks out from our Face2Face campference and we couldn’t be more excited!! It’s always so much...

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