Sickle Cell Awareness Month

September is Sickle Cell Awareness and Childhood Cancer Awareness Month

September is Sickle Cell Awareness Month and Childhood Cancer Awareness Month. These are two communities we support at Next...

Sickle Cell Awareness Month: Some SCD Facts

National Sickle Cell Awareness Month is held every Septemeber. It’s a chance to learn more about the disorder to...

It’s Sickle Cell Awareness Month – Next Step events & programs this Fall 2019

September is Sickle Cell Awareness Month and Next Step is supporting the young sickle cell community in a number...

Experience
Next Step

nextstepfund

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Mar 24

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One of the challenges that many young people with a chronic illness may face is difficulty in expressing themselves. Finding it hard to share their experiences or to advocate for themselves.

Last year alone, we hosted 161 Song Studio sessions. One-on-one sessions with our music therapist in which we aim to let these young adult participants find their voice. to discover new ways to advocate for themselves.

#IBelieveInMe #Teens #YoungAdults #Cancer #HIV #RareGeneticDisorders #ChronicIllness #MusicTherapy ...

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nextstepfund

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Mar 24

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Sharing his experiences and working on ‘Come and Walk a Mile’ was very important for Ethan, a Next Step participant. He wants to speak up for those living with rare and chronic diseases, give them a voice, and show them that even if they feel isolated, they are not alone and they are part of a wider community.

Ethan joined our collaboration with @pfizerinc and @kendallsquareorch and some of his Next Step peers to record a live version of our song, Come and Walk a Mile. Find out more from Ethan!

Please share so more young people like Ethan know they have a safe community at Next Step to practice using their voice.

#RareDisease #OriginalSong #RareDiseases #RareDiseaseCommunity #Boston #CambridgeMA ...

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Sickle Cell Awareness Month

September is Sickle Cell Awareness and Childhood Cancer Awareness Month