2022 Summer Campference for Young People Living with Rare Genetic Disorders


We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday, July 7th to Sunday, July 10th, 2022. This FREE Next Step Campference is open to young people, ages 16-24. Part camp, part conference, our FREE 4-day Summer Campference program fosters friendships and community with peers who […]


Next Step Youth Holiday Party

Let's celebrate 2022 together! Join us at the annual Next Step Youth Holiday Party! Our holiday party is a special time where we bring seriously ill participants from our three youth groups together for a fun party that involves community building activities, good food and beverages, and music! Here are the details for this year's […]


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