Do you experience complicated feelings around life, your medical journey, connections with others? Are you struggling with your confidence and using your voice with your doctors, at school, work or […]
Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX
