We are hosting our 2025 Spring Campference for young adults, ages 18-29, living with a chronic illness from Friday, April 11th to Sunday, April 13th at the Hampton Inn & Suites Watertown Boston in Watertown, MA. Part camp, part conference, our 3-day Spring Campference fosters friendships and community with peers who "get it." At a […]
Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX
