“Living with a rare disease is isolating and very lonely at times and Next Step with its programs empowers individuals with a bridge into a welcoming community of young adults who have experienced similar realities and face them with a strength others can only imagine.”
-Next Step participant, age 24
Rare Disease Day 2020 is this Saturday, February 29th and we want to raise awareness about the programs we offer for teenagers and young adults living with a rare disease.
CLICK HERE to learn more about our FREE community, music and mentorship programs for young people, ages 16-29, living with a rare disease. You are not alone.
LISTEN to original music written by Next Step participants living with a rare disease.