February is Rare Disease Month, culminating with Rare Disease Day at the end of the month.
As we recognize and celebrate this important month, we’re excited to share that we’re offering several free online and in-person community, music and mentorship programs this Spring 2026 for teens and young adults, ages 13-29, living with rare disease.
When you join the Next Step community, you’ll get to:
- Meet other young people living with a rare disease
- Opportunities to write an original song about your life
- Connect with a mentor to help you reach your goals
Questions?
Email Kepler Jeudy, Next Step Program Director, or Casey Casey, Next Step Nursing Director & Partnership Coordinator, if you have any questions or need more information about our programs.
