Rare Genetic Disorder


Run the 2023 Boston Marathon

You can be part of Boston’s longest sports tradition while supporting a life-changing cause! Run the 127th Boston Marathon...

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2022 Summer Campference for Young People Living with Rare Genetic Disorders

We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...

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2022 Next Step Charity Golf Tournament at Myopia Hunt Club

Myopia Hunt Club, 435 Bay Road, South Hamilton, MA 01982 Join us for a unique opportunity at Myopia Hunt...

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Thank you, Hannah and Sean!

Team Next Step finished the 126th Boston Marathon with smiles! Hannah Crowley and Sean Brown raised over $36,000 in...

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Spread the word about our 2022 Summer Campferences!

Our FREE Summer Campference program is back for the 13th year! Part camp, part conference, thousands of seriously ill...

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Welcome to the team, Gail!

Exciting Next Step news! We have a new member on our staff to help us reach even more seriously...

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YARR/Next Step Spring 2022 Virtual Campference

Next Step is hosting a FREE virtual Spring Campference in partnership with Young Adult Representative of RDLA (YARR) from...

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Run the 2023 Boston Marathon for Next Step!

You can be part of Boston’s longest sports tradition while supporting a life-changing cause! Run the 127th Boston Marathon...

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Next Step is hiring!

Youth Engagement Coordinator Job Description Organization: Next Step Position: Youth Engagement Coordinator Location: 99 Bishop Allen Drive, Cambridge, MA...

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Next Step is Hiring Summer Interns!

Internship Organization: Next Step Internship Position: Summer Program Associate Internship Length: ~10 weeks (Ideal dates are Monday, June 6...

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