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NextStepFund 2 Mar

Have you had enough of relying on your parents and doctors for important information that actually helps? Want advice about self-care tips,…

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NextStepFund 2 Mar

Next Step programs work because of the work that the young adults put into them. We're there for support but we aren't…

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NextStepFund 1 Mar

It's Monday! That means that we have a new episode of Real Talk. This week Quita and Casey talk about chronic illness,…

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NextStepFund 28 Feb

Happy Rare Disease Day! Have you applied for our Summer Campference on Thursday, July 8th to Saturday, July 10th? What are you…

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'; Next Step @nextstepfund ·

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Are you a high school #teen with #sicklecelldisease? Are you tired of relying on your doctors and parents for support? We've got the program for you! #STRIVE will connect you with peers who know what it's like to have SSD at that age. You'll also get support from college mentors

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'; Next Step @nextstepfund ·

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Hi @BeeBraveBuddies! We have a great opportunity for young adults, ages 16-24, impacted by cancer. Our 3-day Virtual Summer Campference is back, June 25-27th! It's a place to have fun and learn with a community that gets it. And it's FREE! Apply here:
http://nextstepnet.org/campference/

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'; Next Step @nextstepfund ·

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Hi @Hope4YAWC! We have a great opportunity for young adults, ages 16-24, impacted by cancer. Our 3-day Virtual Summer Campference is back, June 25-27th! It's a place to have fun and learn with a community that gets it. And it's FREE! Apply here:
http://nextstepnet.org/campference/

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'; Next Step @nextstepfund ·

4h 1366822835298131972

Hi @karenBRCAMTL! We have a great opportunity for young adults, ages 16-24, impacted by cancer. Our 3-day Virtual Summer Campference is back, June 25-27th! It's a place to have fun and learn with a community that gets it. And it's FREE! Apply here:
http://nextstepnet.org/campference/

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nextstepfund

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Mar 2

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Have you had enough of relying on your parents and doctors for important information that actually helps? Want advice about self-care tips, school, or your social life from people who really "get it"?

Next Step's STRIVE program is for you as Urjita explains! At STRIVE you can talk to peers and college-aged mentors who know what it's like to go through high school while managing their sickle cell. There is still time to sign up for the Spring semester! Go to the link in our bio to learn more and sign up. It's free!

#STRIVE #teens #sicklecelldisease #highschool #mentorship #mentors #sicklecell #free #join ...

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nextstepfund

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Mar 2

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Next Step programs work because of the work that the young adults put into them.

We're there for support but we aren't doing the hard work, the young people are.

#ibelieveinme #teens #youngadults #cancer #hiv #raregeneticdisorders ...

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nextstepfund

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Feb 28

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Happy Rare Disease Day! Have you applied for our Summer Campference on Thursday, July 8th to Saturday, July 10th? What are you waiting for?! It’s FREE to join! Apply today in our bio link or message us with questions!

#SummerCampference
#RareDiseaseDay #RareDiseaseDay2021 ...

21 3

nextstepfund

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Feb 27

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We have so many exciting (and FREE!) opportunities for teens and young adults living with cancer, HIV and rare genetic disorders to get involved in our community this spring and summer! Visit our bio link to join us!

#ibelieveinme ...

22 1

nextstepfund

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Feb 26

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On this week's episode sat down with Shannon von Felden from @rare_advocates They talked about the importance of getting involved for young adults living with rare disease. They also talked about how to get started.

Don't forget to tune in on Monday for the next episode!

#ibelieveinme #igtv
#realtalk #advocacy #advocate #raredisease #teens #youngadults ...

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nextstepfund

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Feb 26

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“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When I first came to Next Step I was in a mindset that I was defined by what I live with and what I have gone through because of my rare disease."

Next Step programs give teen and young adults living with a rare disease diagnosis an opportunity to learn from their peers how they overcame different obstacles that others may be facing. They learn different ways that they can leave behind a mindset that has been holding them back as they prepare to move into adulthood.

#ibelieveinme #rarediseaseday #rarediseaseday2021
#rarediseas #raregeneticdisorders #teens #youngadults #mentor #mentorship ...

13 1

nextstepfund

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Feb 25

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On this Throwback Thursday we're taking a look back when Bill and Quita went to the Massachusetts State House (2016 & 2017) to raise awareness for Next Step and advocate for teens and young adults living with rare diseases.

We couldn't be more proud of our team!

#ibelieveinme #ThrowbackThursday #teens #youngadult #rarediseaseday2021 #rarediseaseday #raredisease #team #nonprofit ...

24 1

nextstepfund

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Feb 24

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Next Step's first 2021 virtual campference starts tomorrow!

We understand that it's extremely difficult for a non Next Step insider to know what a campference actually is but fear not!

Our handy FAQs page can answer your questions. Visit the link in our bio to learn about all of our programs. If you want to learn more send us a message!

#ibelieveinme #faqs #programs #virtualprograms #teens #youngadults #cancer #hiv #raregeneticdisorders ...

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