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Unlocking new songs on Giving Tuesday
We’re halfway through the day, and the donations keep coming in! We’re $4,400 away from the $15,000 matching gift,...
read moreDonate to our Giving Tuesday campaign
Giving Tuesday is one week from today on Tuesday, December 3, 2024. Founded in 2012, Giving Tuesday is an...
read moreWe hosted our first NY Campference!
New friendships, memories, knowledge and life skills. We recently delivered our first FREE Campference program for young adults living...
read moreToday is our 23rd birthday!
Today is our 23rd birthday! Woohoo! 23 years ago today, Bill Kubicek, Next Step Executive Director and Founder, had...
read moreNext Step Songbook is returning in 2025
Do you experience complicated feelings around life, your medical journey, connections with others? Are you struggling with your confidence...
read moreJoin STRIVE this Fall 2024
Next Step STRIVE is a FREE weekly after-school mentorship program for teens living with Sickle Cell Disease in Boston,...
read moreWatch Kepler recap our 2024 Spring Sickle Cell Campference
In March 2024, we hosted a four-day residential Spring Campference for sixteen teens and young adults, ages 18-29, living...
read moreJoin our 2024 Summer Campference for young people living with a chronic illness
We are hosting our annual Summer Campference for young people living with a chronic illness from Thursday, July 11...
read moreJoin our 2024 Summer Campference for young people living with HIV
We are hosting our annual Summer Campference for young people living with HIV from Thursday, July 25 to Sunday,...
read moreJoin our mentoring program this summer 2024
Do you have goals that you just can’t seem to make progress on? Maybe you feel like you know...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX