Programming
Join our 2022 Summer Campference for young people living with rare genetic disorders
We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...
read moreJoin our 2022 Summer Campference for young cancer survivors
We are hosting Face2Face, our annual virtual Summer Campference for young cancer survivors, from Thursday, June 23 to Sunday,...
read moreNext Step is Hiring Summer Interns!
Internship Organization: Next Step Internship Position: Summer Program Associate Internship Length: ~10 weeks (Ideal dates are Monday, June 6...
read moreJoin the 2022 YARR/Next Step Spring Campference
Next Step is hosting a FREE virtual Spring Campference in partnership with Young Adult Representative of RDLA (YARR) from...
read moreJoin our 2022 Spring Campference for Young People Living with HIV
Are you a young person, ages 18-29, living with HIV and looking for an opportunity to meet new friends...
read moreSTRIVE is back! Join our Spring 2022 semester!
Are you a high school teenager living with sickle cell disease or know a young person with sickle cell?...
read moreSeptember is Sickle Cell Awareness and Childhood Cancer Awareness Month
September is Sickle Cell Awareness Month and Childhood Cancer Awareness Month. These are two communities we support at Next...
read moreApply to the 2021 Fall STRIVE Semester
Next Step STRIVE is a FREE weekly after-school mentorship program for teens living with Sickle Cell Disease in Boston,...
read moreJoin our 2021 Fall Campference for young adults living with sickle cell
Next Step is hosting our 2021 Fall Campference for young adults, ages 18-29, living with sickle cell on Thursday,...
read moreApply to a 2021 Next Step Summer Campference!
If you are, or know, a teen or young adult, ages 16-24, living with cancer, HIV, or a rare...
read more
Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX