Upcoming Events › Rare Genetic Disorder

Storytelling in Rare Disease – Horizon’s #RAREis Community raises awareness of rare diseases by sharing stories, accomplishments, hopes, fears, and dreams. Through this virtual workshop, we’ll be discussing the power of sharing stories in rare disease through social media and other avenues. You have a story that's just your own. Maybe you want to share it online. Maybe you want to share it with your best friend. Maybe you just want to be able to write it down for yourself.…