Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,� highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media. ...https://www.nextstepnet.org/whenlightningstrikes/
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.