We are hosting two different sessions of our FREE residential Summer Campference program for young people, ages 16-24, living with a chronic illness at the Warren Conference Center and Inn in Ashland, MA. Part camp, part conference, our 4-day Summer Campference fosters friendships and community with peers who "get it." At a Next Step Summer Campference, […]
Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX
