Sickle Cell
Next Step is hiring!
Mentorship Coordinator Job Description Organization: Next Step Position: Mentorship Coordinator Location: 99 Bishop Allen Drive, Cambridge, MA Organization...
read moreNext Step is hiring!
Youth Engagement Coordinator Job Description Organization: Next Step Position: Youth Engagement Coordinator Location: 99 Bishop Allen Drive, Cambridge, MA...
read moreJoin our 2022 Summer Campference for young people living with rare genetic disorders
We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...
read moreNext Step is Hiring Summer Interns!
Internship Organization: Next Step Internship Position: Summer Program Associate Internship Length: ~10 weeks (Ideal dates are Monday, June 6...
read moreSTRIVE is back! Join our Spring 2022 semester!
Are you a high school teenager living with sickle cell disease or know a young person with sickle cell?...
read moreFinding My Voice Through Music
Something magical happens for a young person living with a serious illness when they step into the world of...
read moreCongratulations and thank you Team Next Step!
THEY DID IT! The remaining members of Team Next Step conquered the in-person 49th Annual Falmouth Road Race on...
read moreRun the Falmouth Road Race on the official course!
Join Next Step for the 2021 ASICS Falmouth Road Race! Run in person on August 15th or complete a...
read moreNext Step is grateful for you. Watch Nicole explain why.
2020 was a year like no other for young people living with a serious illness. The issues playing out...
read moreSeptember is a big month for the Next Step community
We recognized Sickle Cell Awareness Month and Childhood Cancer Awareness Month this September on our social media. Next Step...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX