News
Join a Summer Campference
We are hosting two different sessions of our FREE residential Summer Campference program for young people, ages 16-24, living...
read moreMeet Laura: Rare Disease Month
Since 2008, February has been Rare Disease Month. A time to highlight the unique challenges faced by young people...
read moreMeet Madison: Rare Disease Day
Madison, a young person living in Las Vegas, is new to Next Step but has already found her voice...
read moreNext Step Open House in March!
We are hosting an Open House at our office in Cambridge, MA on Saturday, March 22 from 11:30am to...
read moreSupport our Boston Marathon team
Team Next Step is running the Boston Marathon for an 11th time! Five amazing athletes have volunteered to run...
read moreJoin our 2025 Falmouth Road Race team
Want to add one of the most prestigious summer races in the country to your resume while joining a...
read moreJoin our Mentoring Program this Spring
Do you have goals that you just can’t seem to make progress on? Maybe you feel like you know...
read moreJoin Next Step Songbook this Spring
Do you experience complicated feelings around life, your medical journey, connections with others? Are you struggling with your confidence...
read moreJoin our FREE Spring Campference
We are hosting our 2025 Spring Campference for young adults, ages 18-29, living with a chronic illness from Friday,...
read moreNext Step is expanding to Philadelphia and New Haven
Exciting news from Next Step! We are expanding our STRIVE mentorship program to Philadelphia and New Haven in the...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX