News
Join STRIVE this Fall 2024
Next Step STRIVE is a FREE weekly after-school mentorship program for teens living with Sickle Cell Disease in Boston,...
read moreSupport our Falmouth Team
We have an amazing group of volunteers running the 52nd ASICS Falmouth Road Race this summer. They are not...
read moreWatch Kepler recap our 2024 Spring Sickle Cell Campference
In March 2024, we hosted a four-day residential Spring Campference for sixteen teens and young adults, ages 18-29, living...
read moreJoin our 2024 Summer Campference for young people living with a chronic illness
We are hosting our annual Summer Campference for young people living with a chronic illness from Thursday, July 11...
read moreJoin our 2024 Summer Campference for young people living with HIV
We are hosting our annual Summer Campference for young people living with HIV from Thursday, July 25 to Sunday,...
read moreJoin our mentoring program this summer 2024
Do you have goals that you just can’t seem to make progress on? Maybe you feel like you know...
read moreThank you and congratulations to our 2024 Boston Marathon team
All of us at Next Step want to send a huge thank you to our 2024 Boston Marathon team...
read moreToday is International Rare Disease Day
February 29th, the rarest day of the year, is International Rare Disease Day! It’s a day devoted to raising...
read moreRun the 2024 Falmouth Road Race
We have a special opportunity for you to add a prestigious national running race to your running resume while...
read moreWe welcomed 20 new young people in January
You’re already making an impact this year. Because of your support, we welcomed over 20 new seriously ill young...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX