News
Today is International Rare Disease Day
February 29th, the rarest day of the year, is International Rare Disease Day! It’s a day devoted to raising...
read moreRun the 2024 Falmouth Road Race
We have a special opportunity for you to add a prestigious national running race to your running resume while...
read moreWe welcomed 20 new young people in January
You’re already making an impact this year. Because of your support, we welcomed over 20 new seriously ill young...
read moreJoin Next Step Mentoring Program this spring
Do you have goals that you just can’t seem to make progress on? Maybe you feel like you know...
read moreJoin STRIVE 2024 spring semester
Next Step STRIVE is a FREE weekly after-school mentorship program for teens living with Sickle Cell Disease in Boston,...
read moreJoin Next Step Songbook
Do you experience complicated feelings around life, your medical journey, connections with others? Are you struggling with your confidence...
read moreJoin our 2024 Spring Campference for young adults living with sickle cell
We are hosting our annual Spring Campference for young adults living with sickle cell disease from Friday, April 5th...
read moreJoin our 2024 Spring Campference
We are hosting our annual Spring Campference for young adults living with chronic illness from Friday, March 1st to...
read moreYou helped Naia navigate the adult healthcare system
Next Step is closing in on their goal of raising $70,000 this holiday season – only $15,000 more to...
read moreYou helped Naia get back into advocacy
Next Step needs $30,000 to reach their fundraising goal this holiday season. $30,000 will fund one 4-day Next Step...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX