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Rare Disease Month: Our Spring Programs
February is Rare Disease Month, culminating with Rare Disease Day at the end of the month. As we recognize...
read moreMeet Laura: Rare Disease Month
Since 2008, February has been Rare Disease Month. A time to highlight the unique challenges faced by young people...
read moreMeet Madison: Rare Disease Day
Madison, a young person living in Las Vegas, is new to Next Step but has already found her voice...
read more2025 Summer Campference
We are hosting two different sessions of our FREE residential Summer Campference program for young people, ages 16-24, living...
read more2025 Spring Campference
We are hosting our 2025 Spring Campference for young adults, ages 18-29, living with a chronic illness from Friday,...
read moreWatch Kepler recap our 2024 Spring Sickle Cell Campference
In March 2024, we hosted a four-day residential Spring Campference for sixteen teens and young adults, ages 18-29, living...
read moreJoin our 2024 Summer Campference for young people living with a chronic illness
We are hosting our annual Summer Campference for young people living with a chronic illness from Thursday, July 11...
read moreJoin our 2024 Summer Campference for young people living with HIV
We are hosting our annual Summer Campference for young people living with HIV from Thursday, July 25 to Sunday,...
read moreToday is International Rare Disease Day
February 29th, the rarest day of the year, is International Rare Disease Day! It’s a day devoted to raising...
read moreWe welcomed 20 new young people in January
You’re already making an impact this year. Because of your support, we welcomed over 20 new seriously ill young...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX