community
Today is International Rare Disease Day
February 29th, the rarest day of the year, is International Rare Disease Day! It’s a day devoted to raising...
read moreWe welcomed 20 new young people in January
You’re already making an impact this year. Because of your support, we welcomed over 20 new seriously ill young...
read moreJoin our 2024 Spring Campference for young adults living with sickle cell
We are hosting our annual Spring Campference for young adults living with sickle cell disease from Friday, April 5th...
read moreJoin our 2024 Spring Campference
We are hosting our annual Spring Campference for young adults living with chronic illness from Friday, March 1st to...
read moreYou helped Naia navigate the adult healthcare system
Next Step is closing in on their goal of raising $70,000 this holiday season – only $15,000 more to...
read moreYou helped Naia say “I believe in me”
“I am a Bad Ass.” Because of of your support, Naia, a 26-year-old cancer survivor, credited Next Step for...
read moreJoin our FREE Fall Campference
We are hosting our annual Fall Campference for young adults living with chronic illness from Friday, October 20 to...
read moreJoin a 2023 Next Step Summer Campference!
Part camp, part conference, our free, residential Summer Campferences foster friendships and community with peers who “get it.” Next...
read moreEthan is asking for help. Support Next Step.
This holiday season our goal is to raise $60,000, so that more young people living with cancer, HIV, sickle...
read moreEthan needed a community
Dear Friend, Community is paramount to living a full life, but so often is taken for granted. For a...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX