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Next Step mentors “get it”
“Sometimes people will say, “Everything will be all right if you just push through.” But hearing it from people...
read moreNext Step’s music program, Song Studio, is a hit!
“Recording my song gave me a sense of possibility – that I am more than this disease and have...
read moreDonate to Next Step
Please donate to the 2019 Next Step Annual Fund and help us bring the transformative power of community, music,...
read moreLast night we hosted a panel for teenagers living with sickle cell disease!
Last night, we hosted a really important survivor panel at our office in Cambridge, Massachusetts during our after-school mentorship...
read more2019 Fall Campference for teens & young adults living with sickle cell disease
Next Step is hosting our 3rd Annual weekend Fall Campference for young adults, ages 18-29, living with sickle cell...
read moreQuita looks back on our third and final Summer Campference of 2019
Our third Summer Campference, One Love, is always an experience unlike any other. This year, 23 young people living...
read moreBill explains why Campference matters
Why did you start the Campference program? The power of a positive community on the mindset of a teen...
read moreStep up to the mic or pen OR paint brush at Next Step!
Do you have something to say or want to get off your chest but singing isn’t your thing? At...
read moreStep inside Next Step’s Song Studio with Kimberly
Seriously ill young people need a safe place to practice stepping up to the mic – so they can...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
Read morehttps://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX