free program
Tutoring & mentoring support for teens 2026-2027 academic year
Next Step STRIVE is a FREE weekly tutoring program for teens, ages 13-18, living with a chronic illness in...
read moreJoin a Summer Campference
We are hosting two different sessions of our FREE residential Summer Campference program for young people, ages 16-24, living...
read more2025 Spring Campference
We are hosting our 2025 Spring Campference for young adults, ages 18-29, living with a chronic illness from Friday,...
read moreWatch Kepler recap our 2024 Spring Sickle Cell Campference
In March 2024, we hosted a four-day residential Spring Campference for sixteen teens and young adults, ages 18-29, living...
read moreJoin our mentoring program this summer 2024
Do you have goals that you just can’t seem to make progress on? Maybe you feel like you know...
read moreWe welcomed 20 new young people in January
You’re already making an impact this year. Because of your support, we welcomed over 20 new seriously ill young...
read moreJoin STRIVE this Fall 2022
Next Step STRIVE is a FREE weekly after-school mentorship program for teens, ages 13-18, living with Sickle Cell Disease...
read moreFall 2022 Campference for young adults living with sickle cell
We are hosting a FREE Fall 2022 Campference for young adults, ages 18-29, living with sickle cell disease on...
read moreI’m In Control – STRIVE’s lip sync video
In Spring 2022, our mentees and mentors in Next Step’s STRIVE program for teens living with sickle cell came...
read moreSpread the word about our 2022 Summer Campferences!
Our FREE Summer Campference program is back for the 13th year! Part camp, part conference, thousands of seriously ill...
read more
Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX