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Do you experience complicated feelings around life, your medical journey, connections with others? Are you struggling with your confidence...
read moreJoin our 2024 Spring Campference for young adults living with sickle cell
We are hosting our annual Spring Campference for young adults living with sickle cell disease from Friday, April 5th...
read moreJoin our 2024 Spring Campference
We are hosting our annual Spring Campference for young adults living with chronic illness from Friday, March 1st to...
read moreYou helped Naia navigate the adult healthcare system
Next Step is closing in on their goal of raising $70,000 this holiday season – only $15,000 more to...
read moreWatch ‘Come and Walk a Mile’
‘Come and Walk a Mile’ is an original Next Step song created by our young participants. A mile can...
read moreEthan is asking for help. Support Next Step.
This holiday season our goal is to raise $60,000, so that more young people living with cancer, HIV, sickle...
read moreEthan needed a community
Dear Friend, Community is paramount to living a full life, but so often is taken for granted. For a...
read moreFinding My Voice Through Music
Something magical happens for a young person living with a serious illness when they step into the world of...
read moreNext Step is grateful for you. Watch Nicole explain why.
2020 was a year like no other for young people living with a serious illness. The issues playing out...
read moreTogether, we’re building a lifeline
When talking about a serious illness, the focus is often on the physical effects such as—pain, limitations, symptoms, progression...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
Read morehttps://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX