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Rare Disease Month: Our Spring Programs
February is Rare Disease Month, culminating with Rare Disease Day at the end of the month. As we recognize...
read moreNext Step Songbook (Spring 2026)
Do you experience complicated feelings around life, your medical journey, connections with others? Are you struggling with your confidence...
read moreJoin Songbook
Do you experience complicated feelings around life, your medical journey, connections with others? Are you struggling with your confidence...
read moreJoin Next Step Songbook this Spring
Do you experience complicated feelings around life, your medical journey, connections with others? Are you struggling with your confidence...
read moreThank you for supporting us on Giving Tuesday
You did it! You helped us match the generous $15,000 gift for a total $30,000 raised on Giving Tuesday....
read more$3,600 to go this Giving Tuesday!
The clock is ticking on Giving Tuesday and we NEED you! We are just $3,600 away from receiving a...
read moreJoin our 2024 Summer Campference for young people living with a chronic illness
We are hosting our annual Summer Campference for young people living with a chronic illness from Thursday, July 11...
read moreJoin our 2024 Summer Campference for young people living with HIV
We are hosting our annual Summer Campference for young people living with HIV from Thursday, July 25 to Sunday,...
read moreWe welcomed 20 new young people in January
You’re already making an impact this year. Because of your support, we welcomed over 20 new seriously ill young...
read moreJoin Next Step Songbook
Do you experience complicated feelings around life, your medical journey, connections with others? Are you struggling with your confidence...
read more
Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX