News
Learn about our programs for young people living with a rare disease
“Living with a rare disease is isolating and very lonely at times and Next Step with its programs empowers...
read moreRare Disease Day 2020 is this Saturday, February 29th!
“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...
read moreTickets are on sale for the 2020 Next Step Night Out!
Tickets are on sale for the 2020 Next Step Night Out! On Saturday, May 2nd from 6:30pm-10:30pm, we will...
read moreAndre & Kepler visited Duke University!
This weekend, two members of the Next Step Program Dream Team traveled to Duke University Hospital in North Carolina....
read moreJoin our Summer Campference on July 9-12!
“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...
read moreThank you Salesforce & BetterLesson!
What a day! On Wednesday, the Cambridge offices of Salesforce and BetterLesson came together to host an 18-team charity...
read moreEnter exciting Turkish Airlines raffle by donating to Team Next Step!
Matt and Paul volunteered to run the 2020 Boston Marathon on Monday, April 20th for Next Step! They are...
read more4th Annual Spring Weekend Campference for Young Adults Living with Sickle Cell
Next Step is hosting our 4th Annual Spring Weekend Campference for young adults, ages 18-29, living with sickle cell disease...
read moreJoin Team Next Step!
Punxsutawney Phil says winter is ending early but unfortunately it’s still here but that doesn’t mean it’s too early...
read more2020 Boston Marathon Celebration Lunch
This past Friday, we welcomed both members of our 2020 Boston Marathon team, Matt and Paul, to our Boston...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
Read morehttps://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX