rare disease


Our second Summer Campference was so much fun!

We had so much fun at our second 2023 Summer Campference last weekend. Games were played, life skills were...

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Next Step Summer Mentoring Program

Do you have goals that you just can’t seem to make progress on? Maybe you feel like you know...

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Watch Next Step and Kendall Square Orchestra perform together!

We have exciting news to share with you! A group of Next Step participants living with serious illness had...

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Join a 2023 Next Step Summer Campference!

Part camp, part conference, our free, residential Summer Campferences foster friendships and community with peers who “get it.” Next...

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2023 Summer Campference for young people living with rare genetic disorders and other chronic illness

We are hosting our annual Summer Campference for young people living with rare genetic disorders and other chronic illnesses...

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Join our 2022 Summer Campference for young people living with rare genetic disorders

We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...

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2022 Summer Campference for Young People Living with Rare Genetic Disorders

We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...

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Support Next Step tomorrow on #GivingTuesdayNOW

“The uncertainty of COVID-19 has affected everyone, but for chronically ill teens and young adults who are already vulnerable...

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Next Step Staff Spotlight with Jess!

We thought, during these uncertain times of COVID-19, that it would be fun to take a break from the...

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Thank you to our Summer Campference music therapists!

Have you ever been to a “Campference”? We have! We have three of them every summer; A special 4-day...

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