rare disease
2023 Summer Campference for young people living with rare genetic disorders and other chronic illness
We are hosting our annual Summer Campference for young people living with rare genetic disorders and other chronic illnesses...
read moreJoin our 2022 Summer Campference for young people living with rare genetic disorders
We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...
read more2022 Summer Campference for Young People Living with Rare Genetic Disorders
We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...
read moreSupport Next Step tomorrow on #GivingTuesdayNOW
“The uncertainty of COVID-19 has affected everyone, but for chronically ill teens and young adults who are already vulnerable...
read moreNext Step Staff Spotlight with Jess!
We thought, during these uncertain times of COVID-19, that it would be fun to take a break from the...
read moreThank you to our Summer Campference music therapists!
Have you ever been to a “Campference”? We have! We have three of them every summer; A special 4-day...
read moreLearn about our programs for young people living with a rare disease
“Living with a rare disease is isolating and very lonely at times and Next Step with its programs empowers...
read moreRare Disease Day 2020 is this Saturday, February 29th!
“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...
read moreJoin our Summer Campference on July 9-12!
“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...
read moreMeet Andre!
The Next Step team is growing! Meet Andre! Andre has been with us for a week now. In that...
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