rare disease


Join our 2022 Summer Campference for young people living with rare genetic disorders

We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...

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Support Next Step tomorrow on #GivingTuesdayNOW

“The uncertainty of COVID-19 has affected everyone, but for chronically ill teens and young adults who are already vulnerable...

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Next Step Staff Spotlight with Jess!

We thought, during these uncertain times of COVID-19, that it would be fun to take a break from the...

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Thank you to our Summer Campference music therapists!

Have you ever been to a “Campference”? We have! We have three of them every summer; A special 4-day...

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Learn about our programs for young people living with a rare disease

“Living with a rare disease is isolating and very lonely at times and Next Step with its programs empowers...

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Rare Disease Day 2020 is this Saturday, February 29th!

“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...

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Join our Summer Campference on July 9-12!

“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...

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Meet Andre!

The Next Step team is growing!  Meet Andre! Andre has been with us for a week now. In that...

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Looking back at our 1st Studio Campference!

We are so excited to share with you all an amazing project and video that was created during our...

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Kimberly is directing our first Studio Campference!

Next Step is hosting our first Studio Campference! On Friday, November 22nd to Sunday, November 24th, ten Next Step...

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