rare disease


2023 Summer Campference for young people living with rare genetic disorders and other chronic illness

We are hosting our annual Summer Campference for young people living with rare genetic disorders and other chronic illnesses...

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Join our 2022 Summer Campference for young people living with rare genetic disorders

We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...

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2022 Summer Campference for Young People Living with Rare Genetic Disorders

We are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...

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Support Next Step tomorrow on #GivingTuesdayNOW

“The uncertainty of COVID-19 has affected everyone, but for chronically ill teens and young adults who are already vulnerable...

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Next Step Staff Spotlight with Jess!

We thought, during these uncertain times of COVID-19, that it would be fun to take a break from the...

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Thank you to our Summer Campference music therapists!

Have you ever been to a “Campference”? We have! We have three of them every summer; A special 4-day...

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Learn about our programs for young people living with a rare disease

“Living with a rare disease is isolating and very lonely at times and Next Step with its programs empowers...

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Rare Disease Day 2020 is this Saturday, February 29th!

“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...

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Join our Summer Campference on July 9-12!

“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...

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Meet Andre!

The Next Step team is growing!  Meet Andre! Andre has been with us for a week now. In that...

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