We are hosting our annual Summer Campference for young people living with rare genetic disorders and other chronic illnesses...
read moreWe are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...
read moreWe are hosting FaceForward, our annual virtual Summer Campference for young people living with rare genetic disorders, from Thursday,...
read more“The uncertainty of COVID-19 has affected everyone, but for chronically ill teens and young adults who are already vulnerable...
read moreWe thought, during these uncertain times of COVID-19, that it would be fun to take a break from the...
read moreHave you ever been to a “Campference”? We have! We have three of them every summer; A special 4-day...
read more“Living with a rare disease is isolating and very lonely at times and Next Step with its programs empowers...
read more“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...
read more“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...
read moreThe Next Step team is growing! Meet Andre! Andre has been with us for a week now. In that...
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