rare disease


Rare Disease Day 2020 is this Saturday, February 29th!

“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...

read more

Join our Summer Campference on July 9-12!

“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...

read more

Meet Andre!

The Next Step team is growing!  Meet Andre! Andre has been with us for a week now. In that...

read more

Looking back at our 1st Studio Campference!

We are so excited to share with you all an amazing project and video that was created during our...

read more

Kimberly is directing our first Studio Campference!

Next Step is hosting our first Studio Campference! On Friday, November 22nd to Sunday, November 24th, ten Next Step...

read more

2019 Summer Campference Staff Spotlight – Thank you Laura!

The 2019 Next Step Summer Campference Season has sadly come to an end. We have so many wonderful memories...

read more

Summer Campference #2 – Quita’s Recap!

The second Next Step Summer Campference, Face Forward, has a special place in my heart (each community does to...

read more

Bill explains why Campference matters

Why did you start the Campference program? The power of a positive community on the mindset of a teen...

read more

We wrote an original song at our second Summer Campference!

“WHEREVER I GO” Written by Face Forward 2019 Community Read the lyrics to our new original song and listen...

read more

Celebratory kick-off dinner for Next Step’s 2019 Falmouth Road Race Team

Last night we celebrated our 2019 Falmouth Road Race team at our office in Central Square, Cambridge MA. This...

read more

Stay in touch! Sign up for news and updates.