Rare Genetic Disorder
2019 Summer Campference Staff Spotlight – Thank you Laura!
The 2019 Next Step Summer Campference Season has sadly come to an end. We have so many wonderful memories...
read moreCasey is running Falmouth for Next Step! Read why!
CLICK HERE TO DONATE TO THE 2019 NEXT STEP FALMOUTH ROAD RACE TEAM. THANK YOU FOR SUPPORTING OUR MISSION!...
read moreHappy National Intern Day
Today we want to celebrate National Intern Day by spotlighting our Summer Intern, Catherine. We couldn’t do our work...
read moreDan is running Falmouth for Next Step! Read why!
Meet our good friend and longtime supporter, Dan. Dan has a Ph.D. in Environmental Engineering, loves Marvel movies, and...
read moreSummer Campference #2 – Quita’s Recap!
The second Next Step Summer Campference, Face Forward, has a special place in my heart (each community does to...
read moreBill explains why Campference matters
Why did you start the Campference program? The power of a positive community on the mindset of a teen...
read moreTurkish Airlines travels all over Europe!
Some of the top-ranked cities to visit in the world are located in Europe and our sponsor, Turkish Airlines,...
read moreWe wrote an original song at our second Summer Campference!
“WHEREVER I GO” Written by Face Forward 2019 Community Read the lyrics to our new original song and listen...
read moreThank you Kyle of Kyle Klein Photography!
This past Friday, Kyle of Kyle Klein Photography joined us at the beautiful Warren Conference Center & Inn to...
read moreSummer Campference Number 2!!
It’s time for Summer Campference number 2 at the Warren Conference Center!!! The next four days we will be...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
Read morehttps://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX