mentorship
Join our Summer Campference on July 9-12!
“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...
read more4th Annual Spring Weekend Campference for Young Adults Living with Sickle Cell
Next Step is hosting our 4th Annual Spring Weekend Campference for young adults, ages 18-29, living with sickle cell disease...
read moreMeet Andre!
The Next Step team is growing! Meet Andre! Andre has been with us for a week now. In that...
read moreSummer Campferences 2020 Applications Are Available!
Is a Next Step Summer Campference right for you? It just might be. Next Step Summer Campferences are for...
read moreJP: Support Next Step
Please donate to the 2019 Next Step Annual Fund and help us bring the transformative power of community, music,...
read moreDonate to Next Step
Please donate to the 2019 Next Step Annual Fund and help us bring the transformative power of community, music,...
read moreSupport Next Step!
Please donate to the 2019 Next Step Annual Fund and help us bring the transformative power of community, music,...
read moreLast night we hosted a panel for teenagers living with sickle cell disease!
Last night, we hosted a really important survivor panel at our office in Cambridge, Massachusetts during our after-school mentorship...
read moreDwarfism Awareness Month
As of today, we are halfway through October. Where does the time go? I ask myself that far too...
read more2019 Fall Campference for young adults living with sickle cell disease
Next Step is hosting our 3rd Annual weekend Fall Campference for young adults, ages 18-29, living with sickle cell this...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX