Rare Genetic Disorder
Spread the word about our 2022 Summer Campferences!
Our FREE Summer Campference program is back for the 13th year! Part camp, part conference, thousands of seriously ill...
read moreWelcome to the team, Gail!
Exciting Next Step news! We have a new member on our staff to help us reach even more seriously...
read moreNext Step is hiring!
Youth Engagement Coordinator Job Description Organization: Next Step Position: Youth Engagement Coordinator Location: 99 Bishop Allen Drive, Cambridge, MA...
read moreNext Step is Hiring Summer Interns!
Internship Organization: Next Step Internship Position: Summer Program Associate Internship Length: ~10 weeks (Ideal dates are Monday, June 6...
read moreJoin the 2022 YARR/Next Step Spring Campference
Next Step is hosting a FREE virtual Spring Campference in partnership with Young Adult Representative of RDLA (YARR) from...
read moreNext Step mentors open windows of opportunity
Navigating the challenges of becoming an adult is difficult for anyone. For young adults living with cancer, HIV and...
read moreFinding My Voice Through Music
Something magical happens for a young person living with a serious illness when they step into the world of...
read moreI lived an insular life. You helped to change that.
Dear Friend, My journey as a Next Step participant has been incredible and has had a huge impact on...
read moreOur Boston Marathon team finished the race and raised $38,000!
Marathon Monday in Boston, Massachusetts was a special day for Next Step! Not only did Matthew Hamilton and Paul...
read more2021 Next Step Fishers Island Golf Tournament was a success!
On Wednesday, September 29, 2021, 104 golfers played in the 5th Annual Next Step Fishers Island Golf Tournament at...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX