Rare Genetic Disorder
The healing power of Next Step
Recently, I had the opportunity to sit down and talk (via video conference) with Dr. Mark Salvatore, a pediatric...
read moreTogether, we’re building a lifeline
When talking about a serious illness, the focus is often on the physical effects such as—pain, limitations, symptoms, progression...
read moreWe couldn’t do this without you
Due to advances in medical research and treatment, about 90 percent of children living with chronic illness are surviving...
read moreRegistration for Symphony for Science 2020 is open!
The Kendall Square Orchestra is pleased to present the second annual Symphony for Science on Thursday, December 17, 2020...
read moreSeptember is a big month for the Next Step community
We recognized Sickle Cell Awareness Month and Childhood Cancer Awareness Month this September on our social media. Next Step...
read moreThank you Hemlock Ink!
All of us at Next Step want to thank the amazing staff at Hemlock Ink in Somerville, MA for...
read moreMeet Christo! Team Next Step runner!
Team Next Step is running the 2020 Falmouth Road Race: At-Home Edition for the eleventh year this summer. Our...
read moreMeet Peg! Team Next Step Runner!
Team Next Step is running the 2020 Falmouth Road Race: At-Home Edition for the eleventh year this summer. Our...
read moreMeet Peter! Team Next Step runner!
Team Next Step is running the 2020 Falmouth Road Race: At-Home Edition for the eleventh year this summer. Our...
read moreNext Step’s New Look!
We’re excited to announce Next Step’s new logo and tagline! We want to share with you what led us...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX