Rare Genetic Disorder
Our program team’s response to COVID-19
Our young people need to know more than ever that Next Step is still here and going to show...
read moreOver 50 Next Step virtual programs have been delivered!
Since our office in Cambridge, MA temporarily closed due to COVID-19, our program team has done a tremendous job...
read moreI just listened to a killer podcast episode featuring Next Step’s Quita
A message from Bill our Executive Director… What a gift to have team members understand what Next Step youth...
read moreSupport Next Step today on #GivingTuesdayNOW
UPDATE: 52 Next Step supporters have donated to our #GivingTuesdayNOW – “55 on 5/5 Challenge” Dear Friends...
read moreSupport Next Step tomorrow on #GivingTuesdayNOW
“The uncertainty of COVID-19 has affected everyone, but for chronically ill teens and young adults who are already vulnerable...
read moreNext Step Staff Spotlight with Jess!
We thought, during these uncertain times of COVID-19, that it would be fun to take a break from the...
read moreThe Next Step family needs each other more than ever
Next Step is community. Our participants, our staff and our supporters have come together for over 20 years, and are the...
read moreThank you to our Summer Campference music therapists!
Have you ever been to a “Campference”? We have! We have three of them every summer; A special 4-day...
read moreNext Step mentors “get it”
“Sometimes people will say, “Everything will be all right if you just push through.” But hearing it from people...
read moreNext Step’s music program, Song Studio, is a hit!
“Recording my song gave me a sense of possibility – that I am more than this disease and have...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX