Rare Genetic Disorder
Run the 2020 Falmouth Road Race with Team Next Step!
Got any plans on Sunday, August 16th? It could be a nice Sunday Funday to get a little run...
read moreRun the 2020 Falmouth Road Race for Next Step!
The Falmouth Road Race is on Sunday, August 16th and Team Next Step is looking for runners to fill...
read moreLearn about our programs for young people living with a rare disease
“Living with a rare disease is isolating and very lonely at times and Next Step with its programs empowers...
read moreTickets are on sale for the 2020 Next Step Night Out!
Tickets are on sale for the 2020 Next Step Night Out! On Saturday, May 2nd from 6:30pm-10:30pm, we will...
read moreAndre & Kepler visited Duke University!
This weekend, two members of the Next Step Program Dream Team traveled to Duke University Hospital in North Carolina....
read moreJoin our Summer Campference on July 9-12!
“Next Step has helped me redefine my relationship with the labels that accompany me and my rare disease. When...
read moreThank you Salesforce & BetterLesson!
What a day! On Wednesday, the Cambridge offices of Salesforce and BetterLesson came together to host an 18-team charity...
read moreEnter exciting Turkish Airlines raffle by donating to Team Next Step!
Matt and Paul volunteered to run the 2020 Boston Marathon on Monday, April 20th for Next Step! They are...
read more2020 Boston Marathon Celebration Lunch
This past Friday, we welcomed both members of our 2020 Boston Marathon team, Matt and Paul, to our Boston...
read moreThank you for stepping out to the 3rd Annual Ping Pong For a Purpose!
Last Thursday, January 30th, we hosted the 3rd Annual Ping Pong For a Purpose at Game On in Boston,...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX