Fundraising
Next Step is grateful for you. Watch Nicole explain why.
2020 was a year like no other for young people living with a serious illness. The issues playing out...
read moreRepresentation is Key to Our Community
This year has given us all a new appreciation of the importance of connection. Our young people living with...
read moreRyan shares his Next Step story
No one should have to go it alone. That belief is at the very heart of the Next Step...
read moreThe healing power of Next Step
Recently, I had the opportunity to sit down and talk (via video conference) with Dr. Mark Salvatore, a pediatric...
read moreTogether, we’re building a lifeline
When talking about a serious illness, the focus is often on the physical effects such as—pain, limitations, symptoms, progression...
read moreWe couldn’t do this without you
Due to advances in medical research and treatment, about 90 percent of children living with chronic illness are surviving...
read moreRegistration for Symphony for Science 2020 is open!
The Kendall Square Orchestra is pleased to present the second annual Symphony for Science on Thursday, December 17, 2020...
read moreThank you McCourty Twins & Tackle Sickle Cell!
Last night was a great hour with Devin and Jason McCourty of the New England Patriots during their Tackle...
read moreSeptember is a big month for the Next Step community
We recognized Sickle Cell Awareness Month and Childhood Cancer Awareness Month this September on our social media. Next Step...
read moreThank you for supporting Team Next Step!
We are so grateful and proud of the 33 individuals who volunteered their free time this summer to run...
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Today is @rarediseaseday. The 2026 theme, “More Than You Can Imagine,” highlights equity in care, representation and unseen challenges. 'When Lightning Strikes' was created by youth with sickle cell as they felt this population wasn't represented in media.
...https://www.nextstepnet.org/whenlightningstrikes/
🌍 It’s #RareDiseaseDay 2026! 💜
Today we stand with the 300 million people living with a rare disease. Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.
👉 Read more: https://t.co/T0KRlbRCJX